shannyasia bolton
5/1/15
english 4
15 Links to Resources
http://wepsicklecell.org/who
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/
http://www.medicinenet.com/sickle_cell/article.htm
http://www.webmd.com/pain-management/pain-management-sickle-cell-disease
http://www.mayoclinic.org/diseases-conditions/sickle-cell-anemia/basics/definition/con-20019348
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0022028/
http://www.healthline.com/health/sickle-cell-anemia
http://www.sicklecelldisease.org/
http://www.cdc.gov/ncbddd/sicklecell/index.html
http://www.nejm.org/doi/full/10.1056/NEJM199406093302303
http://ic.steadyhealth.com/sickle_cell_anemia_life_expectancy.html
http://learn.genetics.utah.edu/content/disorders/singlegene/sicklecell/
http://microbewiki.kenyon.edu/index.php/Malaria_Resistance_and_Sickle_Cell_Trait
http://kidshealth.org/kid/health_problems/blood/sickle_cell.html
http://www.ascaa.org/
http://sicklecellfoundation.org/
Friday, May 1, 2015
Thursday, April 30, 2015
Entry 25
shannyasia bolton
4/30/15
english 4
Basic Information about SCD
There is estimated 100,00 people in the U.S who are living with Sickle Cell Anemia, but are not affected by this disease. But millions are affected throughout the world. This disease cannot be prevented but can be treated. Sickle Cell Anemia is a disease in which your blood cells form into a C which makes it very hard for your blood to flow freely. Because the blood cell forms into a c, it causes many health complications such as pain organ damage, or stroke. There isn't really an exact cause for Anemia other than it is hereditary. A couple may produce a child in which one of the parents may have the Sickle Hemoglobin gene which
is the trait sickle, but the other parent may not have any sickle trait. If this takes place there is a 50/50 Chance that the child will have sickle or may not. They could in fact have the gene but experience very little to no symptoms.
All races are susceptible to SCD (Sickle Cell Disease), the reason blood cannot flow freely pass each other is because SCD cause the blood cells to be stiff and sticky, this causes pain to the limbs. There is no cure or prevention from SCD only treatment. You can be diagnosed with SCD as soon as birth. People with SCD can in fact live a normal life as long as they take their medication to help prevent flare up. African Americans are actually mainly diagnosed with SCD.
4/30/15
english 4
Basic Information about SCD
There is estimated 100,00 people in the U.S who are living with Sickle Cell Anemia, but are not affected by this disease. But millions are affected throughout the world. This disease cannot be prevented but can be treated. Sickle Cell Anemia is a disease in which your blood cells form into a C which makes it very hard for your blood to flow freely. Because the blood cell forms into a c, it causes many health complications such as pain organ damage, or stroke. There isn't really an exact cause for Anemia other than it is hereditary. A couple may produce a child in which one of the parents may have the Sickle Hemoglobin gene which
is the trait sickle, but the other parent may not have any sickle trait. If this takes place there is a 50/50 Chance that the child will have sickle or may not. They could in fact have the gene but experience very little to no symptoms.
All races are susceptible to SCD (Sickle Cell Disease), the reason blood cannot flow freely pass each other is because SCD cause the blood cells to be stiff and sticky, this causes pain to the limbs. There is no cure or prevention from SCD only treatment. You can be diagnosed with SCD as soon as birth. People with SCD can in fact live a normal life as long as they take their medication to help prevent flare up. African Americans are actually mainly diagnosed with SCD.
Entry 24
shannyasia bolton
4/20/15
english 4
Additional Information
Sickle Cell Anemia is such a complex blood disease, it hard to treat due to what affects it can cause. As a person who doesn't have sickle hearing about the disease and getting educated made me want to get involved. Especially because I have family members who have SCD. I know of the complications and problems of it. Besides causing physical pain it cause emotions suffering such as depression.
In fact the term Sickle Cell itself doesn't just mean the sickling of a red blood cell but is an term that include all patients who have the sickle cell mutation plus a second mutation gene called 'beta globin'. Which in this case caused the clinical sickling. Clinical sickling is when the blood cells start to attack each other and turn into a shape of an C.
In 2008 mandatory screening for SCD in newborns is enforced in all 50 states including District of Columbia. hey can now diagnose people who are pregnant 10 weeks into their pregnancy if their child has SCD or not. Anyone can be diagnosed with SCD, usually one of the patients parents has the Sickle Cell trait in which the patients inherits. The Sickle Cell trait can be passed on and even skip generations. Sickle Cell Anemia is inherited not caught like virus. People living with SCD can live a normal life as long as they eat right, exercise, and take treatment on time.
Change a life by getting educated on Sickle Cell Anemia, and finding out what you can do tell those who have it. Improve a life by getting involved.
4/20/15
english 4
Additional Information
Sickle Cell Anemia is such a complex blood disease, it hard to treat due to what affects it can cause. As a person who doesn't have sickle hearing about the disease and getting educated made me want to get involved. Especially because I have family members who have SCD. I know of the complications and problems of it. Besides causing physical pain it cause emotions suffering such as depression.
In fact the term Sickle Cell itself doesn't just mean the sickling of a red blood cell but is an term that include all patients who have the sickle cell mutation plus a second mutation gene called 'beta globin'. Which in this case caused the clinical sickling. Clinical sickling is when the blood cells start to attack each other and turn into a shape of an C.
In 2008 mandatory screening for SCD in newborns is enforced in all 50 states including District of Columbia. hey can now diagnose people who are pregnant 10 weeks into their pregnancy if their child has SCD or not. Anyone can be diagnosed with SCD, usually one of the patients parents has the Sickle Cell trait in which the patients inherits. The Sickle Cell trait can be passed on and even skip generations. Sickle Cell Anemia is inherited not caught like virus. People living with SCD can live a normal life as long as they eat right, exercise, and take treatment on time.
Change a life by getting educated on Sickle Cell Anemia, and finding out what you can do tell those who have it. Improve a life by getting involved.
Entry 23
shannyasia bolton
4/30/15
english 4
Additional Information
People normally are diagnosed at birth, the symptoms are developed at a young age. A clinical research team did research on 305 children who were diagnosed at birth. The results showed that however old the child would result in how aggressive they symptoms would be. For example, at 6 months of age the child had 6% of symptoms, at 2 years of age the child had 61% of symptoms, and at 8 years old they had 92% of symptoms.
The pain typically peaks between 19 and 39. Some symptoms can be managed at home, if critical medical assistance is advised. Neurologic complications can even be caused by SCD. 25% of children have had silent ischemic lesions that cause neurocognitive functions to be impaired. This can be prevented by transfusion therapy, meaning a blood transfusion each time the patient goes to medical therapy. SCD does cause pain as well at complications but not every SCD case is the same. Not everyone living with Sickle Cell Anemia are having pain and complications. They can live a normal life by eating and exercising and of course taking their medicine on time.
When people are born with SCD, their immune system are weak. Which cause them to be susceptible to disease and sickness 10x as fast as someone who doesn't have SCD. They have created medicines and techniques to help painful episodes from happening. There are even support groups specifically made for SCD. These groups talks about the complications and problems of having SCD and how to deal with it. You or anyone with SCD can join a support group to help benefit and educate about SCD. SCD is a serious blood disease that shouldn't be taken likely. Help someone you know dealing with it.
4/30/15
english 4
Additional Information
People normally are diagnosed at birth, the symptoms are developed at a young age. A clinical research team did research on 305 children who were diagnosed at birth. The results showed that however old the child would result in how aggressive they symptoms would be. For example, at 6 months of age the child had 6% of symptoms, at 2 years of age the child had 61% of symptoms, and at 8 years old they had 92% of symptoms.
The pain typically peaks between 19 and 39. Some symptoms can be managed at home, if critical medical assistance is advised. Neurologic complications can even be caused by SCD. 25% of children have had silent ischemic lesions that cause neurocognitive functions to be impaired. This can be prevented by transfusion therapy, meaning a blood transfusion each time the patient goes to medical therapy. SCD does cause pain as well at complications but not every SCD case is the same. Not everyone living with Sickle Cell Anemia are having pain and complications. They can live a normal life by eating and exercising and of course taking their medicine on time.
When people are born with SCD, their immune system are weak. Which cause them to be susceptible to disease and sickness 10x as fast as someone who doesn't have SCD. They have created medicines and techniques to help painful episodes from happening. There are even support groups specifically made for SCD. These groups talks about the complications and problems of having SCD and how to deal with it. You or anyone with SCD can join a support group to help benefit and educate about SCD. SCD is a serious blood disease that shouldn't be taken likely. Help someone you know dealing with it.
Entry 22
shannyasia bolton
4/30/15
english 4
Additional Information
There are more than 5 types of way to be treated for SCD. You can receive oral fluid, antibiotics, and pills. Only those with severe anemia are treated with blood transfusion. In fact testing all newborns is required by law in 50 states. They test them using blood samples. A normal healthy blood cell lives for about 120 days, in the case of a sick cell it lives for only 10-20 days. That significantly low. There is roughly about 2 million people with the sickle cell trait and don't even know. This is because they have had no symptoms, or tested for it. People may even develop severe Sickle Cell Anemia, which causes severe symptoms. These symptoms include chest pain and difficulty breathing, stroke, Joint pain and arthritis and bone infarctions , and Blockage of blood flow in the spleen or liver. There is only one FDA drug prescribed for SCD patients, which is called Hydroxyurea. This medicine helps prevent painful episodes. A study showed that patients that used hydroxyurea had decreased symptoms, blood transfusion, and hospitalization. There have only been about 200 people who received a stem cell treatment which almost acts like a cure for SCD. They had to have a sibling donor. This procedure is tricky, there is 5%-10% chance of death. If the procedure is correctly done, the patient was cured and no longer experience painful episodes.
I personally everyone who has SCD should be given free treatment or even the curable procedure if wanted. Also those who suffer with anxiety and stress should talk to someone with the same disorder as them. That way they can relate to one another and cope.
4/30/15
english 4
Additional Information
There are more than 5 types of way to be treated for SCD. You can receive oral fluid, antibiotics, and pills. Only those with severe anemia are treated with blood transfusion. In fact testing all newborns is required by law in 50 states. They test them using blood samples. A normal healthy blood cell lives for about 120 days, in the case of a sick cell it lives for only 10-20 days. That significantly low. There is roughly about 2 million people with the sickle cell trait and don't even know. This is because they have had no symptoms, or tested for it. People may even develop severe Sickle Cell Anemia, which causes severe symptoms. These symptoms include chest pain and difficulty breathing, stroke, Joint pain and arthritis and bone infarctions , and Blockage of blood flow in the spleen or liver. There is only one FDA drug prescribed for SCD patients, which is called Hydroxyurea. This medicine helps prevent painful episodes. A study showed that patients that used hydroxyurea had decreased symptoms, blood transfusion, and hospitalization. There have only been about 200 people who received a stem cell treatment which almost acts like a cure for SCD. They had to have a sibling donor. This procedure is tricky, there is 5%-10% chance of death. If the procedure is correctly done, the patient was cured and no longer experience painful episodes.
I personally everyone who has SCD should be given free treatment or even the curable procedure if wanted. Also those who suffer with anxiety and stress should talk to someone with the same disorder as them. That way they can relate to one another and cope.
Entry 21
shannyasia Bolton
4/30/15
english 4
Additional Information
Those living with SCD can sometimes cause a person to fear, anxiety, depression, and stress. Talking to a health care team can also help out a lot .Even though SCD causes pain and internal damage there is treatment which helps relieve the symptoms so they can get through everyday life. Also maintaining a healthy diet helps out the body a lot. The diet should contain vegetables and fruits.Your diet should also include whole-grains, and low-fat free dairy. Also food that contain protein, lean meats, eggs, poultry without skin, seafood, nuts, seeds, beans. Also certain medications shouldn't be taken. It has been proven that certain medications which contain pseudoephedrine, worsen SCD Symptoms. Such as causing the blood vessels to tighten, which prevents blood cells from flowing freely past each other.
Even the way you dress can affect those with SCD disease. You should avoid cold and hot places. Even swimming in the wrong temperature of water can affect those with SCD. In fact they may need extra oxygen in high altitudes. If employed avoid jobs that require hard labor. Even when traveling in which this travels requires a plane, you should talk to your doctor.
There are people living with SCD who have no symptoms, due to the fact they eat healthy, exercise and take the proper medication. Also they have regular check-ups and take the advice of doctor. Support from Family and friends can help relieve stress and anxiety. Even talking to people the same disease is also very helpful. It lets those affected by SCD that they are not alone and that there are people who share the same disorder. SCD does not cause any visible damage but internal and emotional damage.
4/30/15
english 4
Additional Information
Those living with SCD can sometimes cause a person to fear, anxiety, depression, and stress. Talking to a health care team can also help out a lot .Even though SCD causes pain and internal damage there is treatment which helps relieve the symptoms so they can get through everyday life. Also maintaining a healthy diet helps out the body a lot. The diet should contain vegetables and fruits.Your diet should also include whole-grains, and low-fat free dairy. Also food that contain protein, lean meats, eggs, poultry without skin, seafood, nuts, seeds, beans. Also certain medications shouldn't be taken. It has been proven that certain medications which contain pseudoephedrine, worsen SCD Symptoms. Such as causing the blood vessels to tighten, which prevents blood cells from flowing freely past each other.
Even the way you dress can affect those with SCD disease. You should avoid cold and hot places. Even swimming in the wrong temperature of water can affect those with SCD. In fact they may need extra oxygen in high altitudes. If employed avoid jobs that require hard labor. Even when traveling in which this travels requires a plane, you should talk to your doctor.
There are people living with SCD who have no symptoms, due to the fact they eat healthy, exercise and take the proper medication. Also they have regular check-ups and take the advice of doctor. Support from Family and friends can help relieve stress and anxiety. Even talking to people the same disease is also very helpful. It lets those affected by SCD that they are not alone and that there are people who share the same disorder. SCD does not cause any visible damage but internal and emotional damage.
Entry 20 Conclusion
Shannyasia Bolton
4/30/15
English 4
Final thoughts on Sickle Cell Anemia
Sickle Cell anemia has been an on going epidemic since 1900s when it first was discovered. Times has changed since then. People are living longer than expected due to the new medications that have been discovered as well as technology. With the proper treatment, diet, and exercise little to no symptoms will be experienced by a SCD victims. 1 in 12 African Americans carry the Sickle Cell Trait. All Races are susceptible to SCD. If you know absolutely nothing about SCD you should get educated. Sickle Cell is being less rare and more common.It heavily affects African Americans and people of other African ancestry. SCD is inherited meaning passed from parent to off spring. A safe way to avoid SCD is to get tested as well as your partner to see if you could possibly pass on the trait to their children. If you wondering how you can help the epidemic of SCD, you can donate blood to your local blood bank to help those in need of a blood transfusion. Even becoming an advocate by talking to people with SCD. By doing this you can bring awareness of this disease.You can also give your support to those living with Sickle Cell Anemia,such as a family member, friend, or anyone associated with the SCD. People living with SCD need emotional as well as physical support.
In fact there are several organization which specifically specializes in SCD. One of the organization is called ‘The William E. Proudford Sickle Cell Fund Inc.’ There vision is to have a world without sickle cell by finding a cure. Their Mission is to find a cure, and support those living with SCD. They are currently trying to respectfully ask the President of the United States to acknowledge that SCD is a national health priority. A petition was made on Monday-September 22nd with official campaign launch. But due to cutback the campaign was taken away. They are simply just trying to ask the United states to make SCD a prioritized disease. Get involved stop the epidemic of SCD.
4/30/15
English 4
Final thoughts on Sickle Cell Anemia
Sickle Cell anemia has been an on going epidemic since 1900s when it first was discovered. Times has changed since then. People are living longer than expected due to the new medications that have been discovered as well as technology. With the proper treatment, diet, and exercise little to no symptoms will be experienced by a SCD victims. 1 in 12 African Americans carry the Sickle Cell Trait. All Races are susceptible to SCD. If you know absolutely nothing about SCD you should get educated. Sickle Cell is being less rare and more common.It heavily affects African Americans and people of other African ancestry. SCD is inherited meaning passed from parent to off spring. A safe way to avoid SCD is to get tested as well as your partner to see if you could possibly pass on the trait to their children. If you wondering how you can help the epidemic of SCD, you can donate blood to your local blood bank to help those in need of a blood transfusion. Even becoming an advocate by talking to people with SCD. By doing this you can bring awareness of this disease.You can also give your support to those living with Sickle Cell Anemia,such as a family member, friend, or anyone associated with the SCD. People living with SCD need emotional as well as physical support.
In fact there are several organization which specifically specializes in SCD. One of the organization is called ‘The William E. Proudford Sickle Cell Fund Inc.’ There vision is to have a world without sickle cell by finding a cure. Their Mission is to find a cure, and support those living with SCD. They are currently trying to respectfully ask the President of the United States to acknowledge that SCD is a national health priority. A petition was made on Monday-September 22nd with official campaign launch. But due to cutback the campaign was taken away. They are simply just trying to ask the United states to make SCD a prioritized disease. Get involved stop the epidemic of SCD.
Subscribe to:
Posts (Atom)